Getting diagnosed with non-Hodgkin lymphoma
Your GP should arrange for you to see a specialist if you have symptoms that could be due to non-Hodgkin lymphoma (NHL).
Depending on your symptoms and other factors, this might be an urgent referral.
You will see a specialist as soon as possible. Ask your GP when this is likely to be.
Go to information about the symptoms of NHL
It can be hard for GPs to decide who may have cancer and who might have a more minor condition. For some symptoms, your doctor may ask you to wait to see if the symptoms get better or respond to treatment, such as antibiotics.
There are guidelines for GPs to help them decide who needs a referral. These vary slightly between the different UK nations. Your GP will use these guidelines as well as their own experience and judgement.
If your doctor thinks you need to see a specialist, they will refer you to a .
Your GP should arrange for you to see a haematologist if you have one of these symptoms, and your GP can't explain the cause:
swollen
an enlarged
Your doctor will ask about other symptoms, such as:
unexplained fevers
weight loss
night sweats
itchy skin
shortness of breath
Your doctor will also want to know about any other symptoms. So do mention anything else you are concerned about.
If you are age 24 or younger
You should see a haematologist within 48 hours if you have swollen lymph nodes or an enlarged spleen and your GP can't explain the cause.
The Scottish guidelines are for all blood cancers, not just NHL.
You should have an urgent referral to a specialist if:
your blood test shows you have acute leukaemia or chronic myeloid leukaemia
you have swollen that are larger than 2cm and have either been swollen for more than 6 weeks or are getting bigger
you have an enlarged liver or , but you don’t have any known liver disease
you have bone pain together with or an abnormal paraprotein
a bone x-ray suggests you may have myeloma
You might have an urgent referral to a specialist if you also have any of the following signs or symptoms:
extreme tiredness (fatigue)
heavy sweating at night
weight loss
itching
infections that keep coming back
bone pain
bruising
weeing a lot and feeling very thirsty due to high calcium levels in your blood
The Northern Ireland guidelines are for all blood cancers, not just NHL.
Your GP should refer you immediately to a specialist if:
your blood test results show you have
your GP thinks you have and you have signs of or kidney failure
Your GP should refer you urgently to a specialist if you have an unexplained, enlarged that doesn’t get smaller.
Your GP should do further tests and consider referring you to a specialist if you have some of the symptoms listed below. The urgency of the referral depends on how severe your symptoms are and your test results. Symptoms include:
extreme tiredness (fatigue)
heavy sweating at night
high temperature (fever)
losing a lot of weight
itching all over the whole body
feel breathless
bruising
bleeding
infection keep coming back
bone pain
tummy (abdominal) pain
swollen
enlarged spleen
pain after drinking alcohol
If swollen lymph nodes are your only symptom, you do not need to see a specialist.
Your GP will consider any other symptoms that you are having, so do mention these. They might also take into account whether you have any risk factors that affect your chances of developing NHL.
Read more about the risks and causes of NHL
Sometimes you might feel that your GP is not concerned enough about your symptoms. If you think they should be more concerned, print this page and the symptoms page. Ask your GP to explain why they don’t think you need a referral.
Contact your GP again if your symptoms don't get better or you notice any new or unusual symptoms.
If your GP has referred you, ask them when you should get your appointment. Contact them again if you don’t get one. Or some hospitals have a referral service you could try contacting if you know which hospital you are going to. Explain that you are waiting for an urgent suspected cancer referral
Read more about your urgent referral
Your hospital is working towards waiting time targets. For example, a target to find out whether you have cancer or not. And there are targets to start treatment if you are diagnosed with cancer. These are slightly different depending on where you live in the UK.
Find out about other cancer waiting times
Last reviewed: 02 May 2024
Next review due: 01 May 2027
The most common symptom of NHL is one or more painless swellings in the neck, armpit or groin.
See your GP if you notice a change that isn't normal for you or if you have any of the possible signs and symptoms of non-Hodgkin lymphoma.
There are several tests that you might have to diagnose NHL. Find out more about them.
Your treatment depends on the type and stage of your NHL. Common treatments include chemotherapy, targeted and immunotherapy drugs, radiotherapy and a stem cell transplant.
Practical and emotional support is available to help you cope with non-Hodgkin lymphoma.

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