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Living With Eye Cancer

Changes in your sight after eye cancer

Eye cancers are rare and do not always cause problems with your sight. The effect on your sight depends on:

  • the type of eye cancer you have

  • where in the eye the eye cancer is

  • how advanced the cancer is - more advanced cancers are more likely to affect your sight 

Eyesight problems can range from very minor changes in your vision to complete loss of sight in one eye. Newer treatment methods help to prevent loss of vision for people with eye cancer.

Loss of sight

Some eye cancers are very serious and it can be difficult to protect the eye from damage. Some people may need to have their eyeball removed (enucleation). So they completely lose sight in that eye.

Visual hallucinations

After surgery to remove the eye, some people may have a sensation that their eye is still there. They may see things that are not there. Doctors call these visual hallucinations. It can be very unsettling if this happens. Visual hallucinations are only temporary. Doctors think they happen because the brain is adjusting to the loss of one eye and is remembering past vision from that eye.

Find out about surgery to remove an eyeball

Regular eye check ups

If you have any changes in your vision, it is important that you have regular check ups with an eye specialist. This may be every 6 months, or less often, depending on how much your sight is affected. Your will have your eye check ups during your regular cancer follow up appointments.

Some side effects of radiotherapy can happen within a few months or may take up to a few years. Your follow up eye checks are very important as they can pick possible side effects early.

Learn what happens during follow up appointments

Coping practically with sight changes

Sight changes can affect reading, driving, your work, and how you get around. There is a lot of help available to people with visual problems. This can help you adjust. How much help you need depends on how much your vision has changed.

Coping emotionally with sight loss

Losing the sight of one eye and the eye itself are big things to adjust to. You can feel a range of emotions such as shock, anger, sadness, frustration, and possibly depression and grief. This is normal but understandably it is very difficult to cope with.

You may have to deal with the practical problems that come with sight loss. And if you have a false eye (prosthesis) put in, you could also feel very self conscious for some time and worry about how others see you.

It is important to give yourself time to adjust to the changes. It will get easier to manage, but it takes time and patience. If you can, talk to people close to you during this time. Letting others know how you feel and having them there to support you can make a big difference.

Read more about having a false eye (prosthesis)

Our eyes play a big part in the way we communicate with others. If someone avoids looking you directly in the eye, it can be very off putting and make conversation more difficult. False eyes are so life-like these days that people talking to you may not know which is the good eye and so be looking into your false one. To you, it may look as if they are avoiding your gaze. In this situation, it’s helpful to let them know they should be looking into your other eye.

Changes to your eyes and sight may also make you feel less attractive to your partner, and make you worry about your sexual relationships.

Read about changes in your sex life

It often helps to talk to the people close to you about how you are feeling. Or you may prefer to talk to someone who doesn't know you personally. Counsellors within the NHS are experienced in talking to people who have lost some or all of their sight. There are counselling and general cancer support organisations that can help.

Eye cancer resources and organisations

Last reviewed: 16 Jan 2025

Next review due: 16 Jan 2028

Coping with eye cancer

Coping with eye cancer can be difficult. There is help and support available.

Treatment for eye cancer

Your treatment depends on several factors. These include what type of eye cancer you have, how big it is and whether it has spread (the stage). It also depends on your general health.

Eye cancer resources and organisations

There are lots of organisations and other resources to help you cope with eye cancer and its treatment.

Eye cancer main page

Eye cancer includes different types of cancer. The type of eye cancer you have depends on the type of cell it starts in. There are different parts of the eye, and some of these are more likely to get cancer than others.

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