Resources and support for people with non-Hodgkin lymphoma
Organisations, support groups and books can help you cope with non-Hodgkin lymphoma (NHL).
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Lymphoma Action provides information and support for people affected by lymphoma. They provide a helpline service. They also offer online support meetings and a buddy service for putting patients in touch with each other. They run educational events and webinars.
They have a website which includes a database of lymphoma clinical trials.
Telephone for support or information: 0808 808 5555 (10 am to 3 pm Monday to Friday)
Telephone for general enquires: 01296 619 400
Email: information@lymphoma-action.org.uk
Blood Cancer UK funds research, provides information and support to those affected by blood cancer. They publish information booklets and you can also connect and share experiences with other people dealing with blood cancer.
Support line: 0808 2080 888
Support line opening hours are:
10 am to 4pm on Monday, Wednesday, Thursday and Friday
The African Caribbean Leukaemia Trust (ACLT) aims to increase the number of stem cells, blood and organ donors from all ethnicities, with a focus on African and Caribbean people in the UK who need a transplant.
Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor.
It is looking for people in good health aged 16–30 to join the stem cell register. In particular, they need more people from minority ethnic communities to sign up.
General enquiries: 0303 303 0303, open Monday to Friday 9am to 5pm
DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland, India, Africa and the United States.
People between the ages of 18 to 55 and are in general good health can join the register.
The NHS Blood and Transplant service runs the blood donation scheme and organises the supply of blood products. They also run the NHS Stem Cell Donor Registry. This was previously called the British Bone Marrow Register (BBMR). They help find people stem cell matches.
This UK group gives information and support to people affected by Waldenstrom's Macroglobulinaemia. Their volunteers can answer questions about their experience of specific treatments.
This UK group is supported by the International Waldenstrom's Macroglobulinaemia Foundation (IWMF).
Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year olds diagnosed with cancer, and their friends and families.
Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.
Teenage Cancer Trust
The Place
175 High Holborn
London
WC1V 7AA
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Jeffrey Tobias
Bloomsbury Publishing PLC, 2001
ISBN 978-0747554103
This book covers treatment, side effects and many different types of cancer.
Elizabeth M Adler
Johns Hopkins University Press, 2016
ISBN: 978-0801881800
This US book was written by a doctor diagnosed with lymphoma. It covers the emotional, practical, physical and medical aspects of lymphoma. Some aspects may not apply to UK patients.
Lance Armstrong Foundation
Hodder & Stoughton, 2011
ASIN B005ZTC04U
An inspiring collection of personal stories about cancer and survivorship. It covers all aspects of cancer.
Recommend a book
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Lymphoma Action publishes many booklets and information sheets, which can be ordered or downloaded for free from their website. They cover low and high grade non-Hodgkin lymphomas and much more.
Find local cancer information and support near you
There are organisations and support services in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
