Resources and support for mouth care

Marie Curie provide frontline nursing and hospice care. They also have a free support line and information about all aspects of dying, death and bereavement.

They have online information about mouth problems and helping someone with mouth care:

• Mouth problems and mouth care

• Helping someone with mouth care

Visit the Marie Curie website

Myeloma UK is dedicated to funding research, providing information and supporting those with myeloma. They have an information sheet about mouth care:

Mouth care. Symptoms and complications Infosheet

Visit the Myeloma UK website

A charity that is being run entirely by volunteers. They provide support, advice, and help to people affected by chronic pain and those close to them.

Telephone Pain line: 0345 603 1593 (Monday to Friday from 10am to 4pm) Email: aopisat@btinternet.com

Write to: Action on Pain, 2 Mill Close, Terrington St Clement, Norfolk, PE34 4JG

Visit the Action on Pain website

A support group for anyone who suffers from chronic pain. They deliver self management training to help those with chronic pain.

Freephone: 0800 783 6059 (Monday to Friday 8.30 am to 4.30 pm) Email: info@painassociation.com

Visit the Pain Association Scotland website

Pain Concern offers information and support to people with pain and those who care for them. They run a helpline staffed by volunteers and have an online forum called HealthUnlocked for members to share experiences. You can listen to podcasts that feature interviews with experts and people managing their pain. You can also subscribe to their newsletter, Pain Matters.

Helpline: 0300 123 0789 Email: help@painconcern.org.uk

Visit the Pain Concern website

This organisation provides information and support for people who need artificial feeding. They also have regional support groups for PINNT members.

PO Box 3126 Christchurch Dorset BH23 2XS

Telephone: 020 3004 6193 Email: comms@pinnt.com

Visit the PINNT website

Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm) Contact email form

Visit the Macmillan Cancer Support website

For general health advice and information.

NHS website

NHS 111 online gives information if you need fast medical help but it's not a 999 emergency. 

Information about NHS 111 online

NHS 24 is a confidential telephone health advice and information service for people in Scotland. It provides urgent advice out of hours.

Phone: 111

NHS 24 website

A Bloch and others American Cancer Society, 2010 ISBN 978-0944235782

An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.

A Ko, E Rosenbaum and M Dollinger Andrews McMeel Publishing, 2009 ISBN 9780740786310

The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.

J F Kelvin and L B Tyson Jones and Bartlett Publishing, 2010 ISBN 978-0763777609

An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.

SL Rose and RT Hara Jones and Bartlett Publishers, 2009 ISBN 0763762571

An American book which gives information about caring for someone with cancer, including how to support them when they have symptoms or side effects.

Jane Freeman Sheldon Press, 2012 ISBN 978-1847091413

Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.

Dr P Mortimer and‎ G Levine Elliott & Thompson, 2017 ISBN 1783962852

Explains the causes and symptoms of lymphoedema. Describes treatments, including massage, exercise, and compression garments. It also has information about coping day-to-day with lymphoedema.

Vidyamala Burch Sounds True, 2010 ISBN 9781591797470

Vidyamala has suffered chronic back pain for more than 30 years. She is the co-founder of Breathworks, an organisation which helps people experiencing chronic pain, illness and stress to manage their condition through meditation, body awareness and creative approaches to living.

Clare Shaw Kyle Books, 2023 ISBN 978-1804190654

This cookbook explores the foods that will support and nourish you during and after cancer treatment. It offers more than 150 recipes.

M Williams and others Guilford Press, 2007 ISBN 1593851286

An American book, but two of the authors are British researchers who are helping to promote mindfulness based cognitive therapy courses for people experiencing stress and depression in the UK. A CD of guided meditations is included with the book.