Children's cancer organisations

The Children and Young People's Cancer Association (CCLG) work to coordinate national and international clinical trials. They were previously called the Children's Cancer and Leukaemia Group. They also provide information about cancer for children, young people and their families.

Phone: 0333 050 7654 Email: info@cclg.org.uk

The Children and Young People's Cancer Association website

Children with Cancer UK is looking to improve survival rates across all types of childhood cancer. And support children and their families to live better with and after treatment.

This charity funds research projects at centres of excellence around the UK, with the aim to improve treatment for children and young people with cancer. It also organises free days out for families affected by childhood cancer and funds practical support to help families.

Phone: 0800 222 9000 (9am-5.30pm, Monday-Friday)

Email: info@childrenwithcancer.org.uk

Children With Cancer UK

Young Lives vs Cancer is a charity that provides clinical, practical, financial and emotional support for children and young people and their families who are affected by cancer. You can chat to the social care team through their live chat Monday to Friday 10am to 4pm. Or you can email or phone them.

Phone: 0300 330 0803 Monday to Friday 9am to 5pm. 

Email: getsupport@younglivesvscancer.org.uk

Find out about Young Lives vs Cancer on their website

A children’s charity based in Scotland. It is run by parents whose children have cancer. Gives information and offers a telephone helpline and fun events, plus practical support such as transport to clinics and family holidays.

Tel: 0131 370 3170

Children with Cancer and Leukaemia: Advice and Support for Parents (CCLASP) website

Kids Cancer Charity provides telephone support and a range of other support services for children with cancer and their families. They offer bereavement support, befriending and self help parent support groups. Holidays and 'staycations' are also available.

62 Walter Road Swansea SA1 4PT

Phone: 01792 480500 Email: enquiries@kidscancercharity.org

Find out more about the Kids Cancer Charity

The Childhood Cancer Parents Alliance (CCPA) is made up of parent run organisations that work together to support children with cancer. They also offer support and information to the parents of children with cancer.

Childhood Cancer Parents Alliance website

Camp Simcha offers free services to improve the lives of Jewish children with serious illness including cancer. Provides family liaison officers and home support volunteers to help parents cope. Also offers trips and experiences, including special treats, outings, parties, family retreats and Camp Simcha USA.

Tel: 020 8202 9297 Email: office@campsimcha.org.uk

Read more about Camp Simcha UK

Little Princess Trust provides and fully funds wigs especially designed for children. They also provide personal fitting and styling to ensure the wig is as close as possible to their original hair. They also now specialise in afro wigs. 

To order a wig: 01432 760 060 Wig requests by email: wigs@littleprincesses.org.uk For all other enquiries phone: 01432 352 359 Email: hello@littleprincesses.org.uk

Little Princess Trust website

Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm) Contact email form

Visit the Macmillan Cancer Support website

The Future Fertility Programme Oxford is run by a team of doctors, researchers and tissue bank specialists. They are part of Oxford University Hospitals (OUH). 

They aim to help children and young people at risk of infertility due to illness or treatment. 

Read more about their services

The Oncology Guide provides information through films and animations about the different children’s cancers, common procedures and treatments. The procedure films are child friendly and can help your child understand what is happening. They also sign post to other charities who are on hand to help you things such as grants, disability badge applications, wigs, days out and much more.

Visit the Oncology Guide

Provides information on support services for families whose child or young person has a life-threatening or terminal condition, regardless of the disease involved. They have a live chat feature or you can contact them through their helpline or email service.

Helpline: 0808 8088 100 Email: helpline@togetherforshortlives.org.uk

Together For Short Lives website

Unique helps provide support, information and networking to families affected by rare chromosome or gene disorders. They have a helpline, local groups you might be able to attend in person or online, and conferences or family days you can attend.

Helpline: 01883 723356 Email: info@rarechromo.org

Go to Unique

Along with a comic book line, Jumo Health produces other products such as podcasts, videos, and games. They are all designed to help children, their parents and carers learn more about their health condition.

Read more on the Jumo Health website

Macmillan Cancer Support has a separate section on its website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.

Find out about Macmillan information for teens and young adults

Provided by a charity called HopeLab, these games teach children about cancer. Research has shown that they can help children to cope with cancer and understand their treatment.

Re-Mission website

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year olds diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Teenage Cancer Trust The Place 175 High Holborn London WC1V 7AA

Phone: 020 7612 0370 Monday to Friday 9am to 5pm Email: hello@teenagecancertrust.org

Read more on the Teenage Cancer Trust website

This is mainly a research charity raising funds to help improve treatment for rhabdomyosarcoma. It covers the UK and US. There are stories about children and young people currently going through treatment, have had treatment in the past or have sadly died from the disease. This charity raises awareness, looks at some of the latest research they have funded, as well as providing a support network.

Phone: 07880 701217 Email:  sara.wakeling@alicesarc.org

Alice's Arc website

Blood Cancer UK funds research, provides information and support to those affected by blood cancer. They publish information booklets and you can also connect and share experiences with other people dealing with blood cancer.  

Support line: 0808 2080 888 

Support line opening hours are:

• 10 am to 4pm on Monday, Wednesday, Thursday and Friday

• 10 am to 7pm on Tuesday

• 10 am to 1 pm on Saturdays and bank holidays

Email address: support@bloodcancer.org.uk

Find out more on the Blood Cancer UK website

This organisation provides information, support and counselling for people with primary bone cancer and their families. They also have a financial assistance grants service. They promote research into the causes and treatment of primary bone cancer, in particular osteosarcoma and Ewing sarcoma. 

Telephone: 0113 258 5934 Support and information line: Freephone 0800 111 4855 Monday to Friday 9am to 5pm

Visit the Bone Cancer Research Trust website

The Brain Tumour Charity is the world's largest dedicated brain tumour charity. It funds research, provides support and information services and raises awareness. It aims to reduce the harm brain tumours have on quality of life, and ultimately, to find a cure.

Support line: 0808 800 0004 Email: support@thebraintumourcharity.org  Contact form 

Find out about The Brain Tumour Charity

A UK charity for families and people affected by retinoblastoma. It offers support and information, funds research and raises public awareness of this rare cancer.

The Royal London Hospital Whitechapel Road London E1 1BB

Tel: 020 7377 5578 (Monday to Friday, 9am to 5pm) Email: info@chect.org.uk

Visit the Childhood Eye Cancer Trust website

Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support. 

It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and buddy support. The buddy support service is available if you want to chat to someone who has had a similar experience.

Freephone helpline: 08088 010 444, open Monday to Friday 9am to 4:30pm

Chat via WhatsApp on 07500068065

Go to Leukaemia Care website

Lymphoma Action provides information and support for people affected by lymphoma. They provide a helpline service. They also offer online support meetings and a buddy service for putting patients in touch with each other. They run educational events and webinars.

They have a website which includes a database of lymphoma clinical trials.

Telephone for support or information: 0808 808 5555 (10 am to 3 pm Monday to Friday) Telephone for general enquires: 01296 619 400 Email: information@lymphoma-action.org.uk 

Find out more at the Lymphoma Action website

The Neuroblastoma Society's main aim is to raise funds for research into the disease. Befriending scheme for affected families.

Telephone: 020 3096 7890 Email: hello@neuroblastoma.org.uk

The Neuroblastoma Society website

A national support group for anyone who has lost the sight in one eye, through having cancer or for any other reason. They provide information, telephone support and booklets.

Phone: 0845 108 3161 email: enquiries@one-vision.org.uk

Their website is currently offline.

The Royal Orthopaedic Hospital is a leading centre for orthopaedic oncology. The team specialises in the diagnosis and treatment of benign and malignant tumours of bone and soft tissues.

Royal Orthopaedic Hospital Bristol Road South Northfield Birmingham B31 2AP

Cancer services phone: 0121 685 4049 or 0121 685 4152

Visit the ROHBTS website

Tom’s Trust is a UK charity that provides mental health support to children with brain tumours and their families. They currently support families from 3 cancer centres but hope to expand to more hospitals in the UK soon. As well as providing support they also have a Toolkit for adults supporting siblings of children with brain tumours.

Phone: 0300 102 8667 Email: info@tomstrust.org.uk

Visit Tom’s Trust