Living with bile duct cancer
There are organisations that offer information and support to help you cope with bile duct cancer and its treatment. There are also organisations that offer general cancer support and information.
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Contact our cancer information nurses
Cancer Chat is our online forum where you can share experiences.
AMMF is the UK’s only cholangiocarcinoma (bile duct cancer) charity. They provide information and support, campaign to raise awareness, and encourage and support specialised research teams. AMMF works closely throughout the UK with patients and their carers, clinicians, healthcare professionals, researchers, politicians and policy makers, as well as collaborating internationally.
Enterprise House Bassingbourne Road Stansted Essex CM24 1QW
Tel: 01279 661479 Email: info@ammf.org.uk
Cholangiocarcinoma-UK is an affiliate of the British Association for Study of Liver Disease (BASL). It is a group of doctors, scientists and patients who try to raise awareness of bile duct cancer.
Cholangiocarcinoma UK (part of the British association for the study of the liver)
Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm) Contact email form
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Phone: 0300 123 1801 Email: enquiries@maggies.org
Marie Curie runs 9 centres (hospices) throughout the UK. And a nationwide Marie Curie nursing service, providing care for patients in their own homes throughout the day or night, free of charge.
Head Office: One Embassy Gardens 8 Viaduct Gardens London SW11 7BW
Support line: 0800 090 2309. For emotional support and practical advice about terminal illness, including for family and friends. The support line is open 8am - 6pm Monday to Friday and 10am - 4pm Saturday to Sunday.
Tenovus Cancer Care provides an information service on all aspects of cancer. The charity provides practical and emotional support for people with cancer and their families. They have mobile support units bring cancer treatment into local communities in Wales.
Cardiff (Head Office) Tenovus Cancer Care First Floor Jones Court Womanby Street Cardiff CF10 1BR
Support line: 0808 808 1010
Find out about Tenovus Cancer Care
There are organisations and support services in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
The NHS website has a service that tells you about local information and support in England.
NHS Inform gives information about illness, treatments and NHS services for people in Scotland.
NHS 111 Wales gives health advice and information for people living in Wales.
The Northern Ireland Cancer Network (NICaN) website tells you where to find cancer information and support in Northern Ireland.
Last reviewed: 31 Jul 2024
Next review due: 31 Jul 2027
Treatment for bile duct cancer includes surgery, chemotherapy, targeted cancer drugs and immunotherapy. Which treatments you have depends on a number of factors.
Advanced bile duct cancer has spread outside the bile ducts into nearby lymph nodes or organs. Or it has spread to parts of the body further away from the bile ducts.
Coping with bile duct cancer can be difficult. You might find it helpful to speak about your feelings and there are people who can support you and your family.
There is support to help you cope with advanced bile duct cancer. And the symptom control team can help you feel as well as possible.
Find out about general cancer organisations, other resources and support.
Bile duct cancer is also called cholangiocarcinoma. It is a rare type of cancer that develops in the small tubes that connect the liver and gallbladder to the small bowel.
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